A new framework categorizes diagnostic breakdowns that are unique to the ambulatory setting, where the majority of missed or delayed diagnoses occur. Developed by Boston-based researchers working with an advisory group half-comprised of patients and family caregivers, the framework is based on patient-reported errors in two national surveys.
In ambulatory care, patients and families may be the sole observers of process breakdowns that occur between office visits. And they often can see things, such as symptom changes and care at other settings, not visible to clinicians. When things don’t go well, patients and families can fill gaps in clinician-focused measures and contribute information that may otherwise go missing from organizational learning.
The researchers provide guidance for using the framework and offer an example of how it can be applied: a new online tool, OurDx, available in English and Spanish.